WASHINGTON, D.C. – A resolution designating February 28, 2026, as “Rare Disease Day” unanimously passed the U.S. Senate today. The resolution was led by U.S. Senators John Barrasso (R-Wyo.) and Richard Blumenthal (D-Conn.).
The annual resolution recognizes the need to raise awareness and provide support to the more than 30 million Americans living with rare diseases and disorders. Unfortunately, children account for a significant portion of those affected by rare diseases. The resolution also supports national and global research efforts to develop effective treatments, diagnostics, and cures for rare diseases.
“Rare Disease Day recognizes our commitment to patients living with rare diseases. It also supports the need to expand access to life-saving treatments and invest in future cures,” said Senator Barrasso. “For folks living with a rare condition, it can often leave them feeling lonely and overwhelmed. Since my time as a doctor, it has been a priority of mine to help these patients find the treatment and support they need. I am proud to join this bipartisan effort to recognize and support all Americans living with rare diseases.”
“This resolution honors the many Americans bravely battling rare diseases and reaffirms our commitment to improving their quality of life. I’m incredibly inspired by the strength and resilience of the individuals fighting rare diseases, and I look forward to continuing to promote innovative research and treatment and to improve access to life-saving care,” said Senator Blumenthal.
Co-sponsors of this resolution include U.S. Senators Roger Marshall (R-Kans.), Amy Klobuchar (D-Minn.), Tim Scott (R-S.C.), and Cory Booker (D-N.J.).
Full text of the resolution can be found here.
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